After writing my previous post, I asked what things people were grateful for on a PD group I’m on. There was a couple of people that said there’s nothing good, but I got a really good list of things. So I’m adding them here for everybody to see (and me to look at when I feel down).
I’ve learned what is important and what’s not. I don’t have to be in charge of everything at work. I need to enjoy my life.
I’m confident, although I don’t have specific data on myself, that diet, stress avoidance and exercise has reduced my risks for cancers.
I love how God is showing me the ways he uses my pain to help others grow in character; like compassion, love, generosity… I could go on. Also that He’s refining me, making me a sharper image of Christ. It encourages me to continue with love and grace.
I’ve gained community and had adventures that probably wouldn’t have happened otherwise.
The love for exercising. I also noticed a very strong will to fight every day! I also have more order in my finance, I write everything now. I plan in advance. I lost a lot of weight that means I can wear a bikini soon! My neurologist told me fight this!
I have learned that my wife is more loving than I feared before I told her of the dx
All new life and lots of fulfillment doing the things I love after retiring at age 47.
It’s given me everything. Good and bad. I am really grateful for the perspective on life that I have now. I’ve been “sick” with different things since I was 21 so I am not new to being sick. I’m past the feeling jaded part. My faith has grown stronger. I just try to be a kind person to others but especially to myself. You have to be willing to give yourself grace with this disease. Every single day I have feels like a gift, cliche and all.
A reason for why my body didn’t work.
Loads of things.
It stopped me drinking.
I met my wife through my having PD.
I lost a lot of people who I thought friends.
I’ve met friends since I otherwise wouldn’t have met.
It forces me to exercise every day.
Most of all, it brought my career to an end. This sounds bad, but it means I’ve enjoyed the rare privilege of seeing my son grow.
I get to know great people
I have met people I would never have otherwise had the absolute privilege of getting to know, many of whom have helped sustain me through the years, 25 in total, and not including my friend and husband, for whom this journey with PD is a lot tougher, methinks, than he lets on, and who has allowed his world to limit itself to fit mine. I see the sacrifice more than he thinks, and when i say that, i say it reluctantly, as I am torn between his sacrifice and my heart. And a mention of two children who have wormed their way into my heart. They will surely know who they are.
Looking at the message above I am reminded of one wise man who, helping me with my embarrassment at my inability to walk properly, conjured up a visual picture of a lady who, unable to walk, now confined to a wheelchair, perfected the difficult ability to do wheelies! (In the wheelchair of course).
Once you have established your bona fides as regards your use of a wheelchair, and with PD your symptoms can change so fast that you may be able to enter a hotel ladies room elegantly, and have to be dragged out a few minutes later, laughing!